Sunday, 6 October 2013

First Day of Secret spilling!!

So hello. My name is Ione, but i pretty much use Locky everywhere and friends have called me it, as it is much easier to pronounce than Ione!! :)

So i have started a blog of my life, and to spill all the boring details of my life.

I will start with what i will mostly be talking about, which is my health. I have EDS Type III called Hypermobility Syndrome, which presents itself with the main criteria of Bendy joints and dislocations/subluxtions etc, i have M.E which is very debilitating, a strange thyroid and POTs. Here is the link if you are kind and considerate enough to want to know more about it, so that you may understand what they are all about!!
Hypermobility:: http://hypermobility.org/help-advice/hypermobility-syndromes/what-is-hms/
POTs:: http://hypermobility.org/help-advice/autonomic-problems/
M.E:: http://www.meassociation.org.uk/about/what-is-mecfs/

Now please don't feel you have to look through everything, as i don't want to pump everyone with a mass of information, but i do want to get all the info and awareness out there, because it is important and very real, of which some people still believe it is not.

You are welcome to ask me questions about it, and how to get diagnosed etc, who to call, what to say for docs/nurses/hospitals and colleges/schools, and i will be more than happy to help you all out.

I will also be sharing some information and news about me, of which my horsey/equestrian life goes, and possible competitions, along with possible gaining a 'Canine Partner'.
My pets are very important to me, and without them, i would not be alive today i am sure of it.

Please enjoy, and please help me keep going through my journey, as support is ever so necessary to gain courage and ambitions in life.

Thanks in advance!!!

Locky x

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