Doggie walks in town, and horsey happenings...

So tomorrow we are supposed to go into town to get a couple things.
I will be using oakley's special guide dog harness to aid me around town, as i just simply can't walk properly....it is unfortunately getting worse, and i feel like i now have little control over my legs, and the direction they are supposed to walk in....i feel the most control is in the hips, and that is poor at it's best. I actually feel like i am degenerating with my condition....didn't know it was particularly possible though, as we are supposed to stiffen up and get better over time. I am not sure, it is kinda scary if i am honest.

I am going to get a necklace (chain sort of thing) to put my great grandmother's engagement ring on, as it is just that little bit too big for me, so that i can wear it, without it falling off!!!

I am also going to walk the dog up to my neighbours, up the road. She has four horses, an 18hh cleveland bay, 16hh chestnut, and two shetties :)
It is possible that i will be able to ride them, which is very exciting as i have been missing it soooo much!!!

So i shall update tomorrow and see how it goes :D

I am not off to watch Graham Norton, to see my most favourite actor ever, Benedict Cumberbatch!!! :)

xx

Sad days, and remembering the loved ones.

Just under 3 weeks till CP....very nervous, and i hope oakley behaves (have to see how he is with the other dogs for assessment), and i hope they recognise i do need the help of one. I have noticed over the past year my health has deterioated, and not neccessarily being 'ill' as you all know i can be...more in the sense of my walking ability is worse....most days i walk with my crutch now..and i didn't used to use it ever, picking things up are almost impossible now, dropping things are more frequent, and i feel like i am in the ageing process, where you see a family member get hard of hearing, doesn't see things so well, needs information read to them because they haven't got their glasses...you understand what i mean? :L
I am thankful i have found my personality though now....a few of you know i would change the style i wore, the way i spoke, the way of thinking....either really confident, or would be absolutely nervous of everything, e.g i took on the sherlock persona very strictly, i used to do another character from a t.v programme. I do very much believe being ill distorted those decisions, and made them prolonged to 'find myself'.
I have learnt a lot over the past year. I have found who my true friends are, what i want to do in life, what i am good at, how to cope with being ill, how to release frustration and annoyance in the correct way, to be a hell of a lot more patient with others and my wonderful guardian angel of a dog, Oakley.
I have learnt i can't be the most confident person in life, and there will be times where i cannot do things, but generally if someone is pissing me off i will stand up for myself, and i would not of had the confidence to do so a couple years ago.

I have also learnt, life...is so, so precious. There are many things i want to in life, and i know and have come to terms with being ill means i cannot do half of the things i want to, but i have started a bucket list because i very much need a goal in life. I have at least something for every important aspect in my life. I won't bore you with the details unless you ask for another post to be done of it :)

The reason for this post, is because tomorrow would have been, and still is in many ways, my grandmothers birthday. This will be our 5th birthday without her. I very much miss her, and my only regret in life is that i did not get to spend more time with her....i know i did as much as possible in my short life, but it will never feel like enough. There are so many things i would love to have shown her, and share with her, and the fact i have lost a lot of family since her death, means it is so much harder as i was very close to them.

Sorry for the rant and the boring update of myself....but tomorrow will be a sad day for our family xxx

Conclusion Picture of the Day!!

just got back from a dog walk, saw a couple buzzards on Meshaw Moor, came back and saw a lovely arab called Azzie  very friendly  
saw the people who own him who were getting ready with two little dun ponies who they drive (along with two other 8hh shetlands called cookie and cracker haha) who's daughter suffers with fibro...so they have said i can go and ride azzie whenever i like and don't worry if im suffering and can't do it, and amanda who has an 18hh cleveland bay and another chestnut who i can also ride, who is down the road from these two!  

Pretty good day all in all  haha, exhausted now though!!!! phew!

First Day of Secret spilling!!

So hello. My name is Ione, but i pretty much use Locky everywhere and friends have called me it, as it is much easier to pronounce than Ione!! :)

So i have started a blog of my life, and to spill all the boring details of my life.

I will start with what i will mostly be talking about, which is my health. I have EDS Type III called Hypermobility Syndrome, which presents itself with the main criteria of Bendy joints and dislocations/subluxtions etc, i have M.E which is very debilitating, a strange thyroid and POTs. Here is the link if you are kind and considerate enough to want to know more about it, so that you may understand what they are all about!!
Hypermobility:: http://hypermobility.org/help-advice/hypermobility-syndromes/what-is-hms/
POTs:: http://hypermobility.org/help-advice/autonomic-problems/
M.E:: http://www.meassociation.org.uk/about/what-is-mecfs/

Now please don't feel you have to look through everything, as i don't want to pump everyone with a mass of information, but i do want to get all the info and awareness out there, because it is important and very real, of which some people still believe it is not.

You are welcome to ask me questions about it, and how to get diagnosed etc, who to call, what to say for docs/nurses/hospitals and colleges/schools, and i will be more than happy to help you all out.

I will also be sharing some information and news about me, of which my horsey/equestrian life goes, and possible competitions, along with possible gaining a 'Canine Partner'.
My pets are very important to me, and without them, i would not be alive today i am sure of it.

Please enjoy, and please help me keep going through my journey, as support is ever so necessary to gain courage and ambitions in life.

Thanks in advance!!!

Locky x